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	<title>Active Gray Matter &#187; healthcare</title>
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	<description>Create Options, not Obstacles</description>
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		<title>Is This Really What We Want?</title>
		<link>http://activegreymatter.org/2009/02/is-this-really-what-we-want/</link>
		<comments>http://activegreymatter.org/2009/02/is-this-really-what-we-want/#comments</comments>
		<pubDate>Tue, 10 Feb 2009 18:10:57 +0000</pubDate>
		<dc:creator>Krishanna</dc:creator>
				<category><![CDATA[News]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[healthcare]]></category>
		<category><![CDATA[u.s goverment]]></category>
		<category><![CDATA[medicaid]]></category>
		<category><![CDATA[medicare]]></category>
		<category><![CDATA[Obama Stimulus Bill]]></category>

		<guid isPermaLink="false">http://activegreymatter.org/?p=311</guid>
		<description><![CDATA[VIA Bloomberg.com Commentary by Betsy McCaughey Ruin Your Health With the Obama Stimulus Plan Feb. 9 (Bloomberg) &#8212; RepublicanÂ Senators are questioning whether President Barack Obamaâ€™s stimulus billÂ contains the right mix of tax breaks and cash infusions to jump-start the economy. &#8230; <a href="http://activegreymatter.org/2009/02/is-this-really-what-we-want/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
			<content:encoded><![CDATA[<p>VIA <a href="http://www.bloomberg.com/" target="_blank">Bloomberg.com</a></p>
<p>Commentary by Betsy McCaughey</p>
<blockquote><p><strong><span class="news_story_title">Ruin Your Health With the Obama Stimulus Plan</span></strong></p>
<p>Feb. 9 (Bloomberg) &#8212; RepublicanÂ Senators are questioning whether President <a onmouseover="return escape( popwSearchNews( this ))" href="http://search.bloomberg.com/search?q=Barack+Obama&amp;site=wnews&amp;client=wnews&amp;proxystylesheet=wnews&amp;output=xml_no_dtd&amp;ie=UTF-8&amp;oe=UTF-8&amp;filter=p&amp;getfields=wnnis&amp;sort=date:D:S:d1">Barack Obama</a>â€™s stimulus billÂ contains the right mix of tax breaks and cash infusions to jump-start the economy.</p>
<p>Tragically, no one from either party is objecting to the health provisions slipped in without discussion.Â These provisionsÂ reflect the handiwork of <a onmouseover="return escape( popwSearchNews( this ))" href="http://search.bloomberg.com/search?q=Tom+Daschle&amp;site=wnews&amp;client=wnews&amp;proxystylesheet=wnews&amp;output=xml_no_dtd&amp;ie=UTF-8&amp;oe=UTF-8&amp;filter=p&amp;getfields=wnnis&amp;sort=date:D:S:d1">Tom Daschle</a>,Â until recently the nominee toÂ headÂ the Health and Human Services Department.</p>
<p>Senators should read these provisions and vote against them because they areÂ dangerous to your health. (Page numbers refer to <a onmouseover="return escape( popwOpenWebSite( this ))" href="http://thomas.loc.gov/cgi-bin/query/z?c111:H.R.+1:" target="_blank">H.R. 1 EH</a>, pdf version).</p>
<p>The billâ€™s health rules will affect â€œevery individual in the United Statesâ€ (445, 454, 479).Â Your medical treatments will be tracked electronically by a federal system. Having electronic medical records at your fingertips, easily transferred to a hospital,Â is beneficial. It will help avoid duplicate tests and errors.</p>
<p>But the bill goes further. One new bureaucracy, the National Coordinator of Health Information Technology,Â willÂ monitor treatments to make sure your doctor is doing what the federal government deemsÂ appropriate andÂ cost effective. The goal is to reduce costs and â€œguideâ€ your doctorâ€™s decisions (442, 446).Â These provisions in the stimulus bill are virtually identical to whatÂ Daschle prescribed in his 2008 book, â€œ<a onmouseover="return escape( popwOpenWebSite( this ))" href="http://www.amazon.com/Critical-What-About-Health-Care-Crisis/dp/0312383010/ref=pd_bbs_1?ie=UTF8&amp;s=books&amp;qid=1234118804&amp;sr=8-1" target="_blank">Critical: What We Can Do About the Health-Care Crisis</a>.â€ According to Daschle, doctors have to give up autonomy and â€œlearn to operate less like solo practitioners.â€</p>
<p>Keeping doctors informed of the newest medical findings is important, but enforcing uniformity goes too far.</p></blockquote>
<p><a href="http://www.bloomberg.com/apps/news?pid=20601039&amp;refer=columnist_mccaughey&amp;sid=aLzfDxfbwhzs" target="_blank">Read the rest&#8230;</a></p>
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		<item>
		<title>To Disclose or Not To Disclose: Let&#8217;s Talk</title>
		<link>http://activegreymatter.org/2009/01/to-disclose-or-not-to-disclose-lets-talk/</link>
		<comments>http://activegreymatter.org/2009/01/to-disclose-or-not-to-disclose-lets-talk/#comments</comments>
		<pubDate>Thu, 22 Jan 2009 19:07:09 +0000</pubDate>
		<dc:creator>Krishanna</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[self-employment]]></category>
		<category><![CDATA[disclosure]]></category>
		<category><![CDATA[healthcare]]></category>
		<category><![CDATA[illness]]></category>
		<category><![CDATA[privacy]]></category>
		<category><![CDATA[robert scoble]]></category>
		<category><![CDATA[scobilizer]]></category>

		<guid isPermaLink="false">http://activegreymatter.org/?p=282</guid>
		<description><![CDATA[There&#8217;s a thread winding it&#8217;s way around social media and tech circles right now about Internet transparency. I had a discussion with a friend about it not too long ago as she was moving through questions of &#8220;How much is &#8230; <a href="http://activegreymatter.org/2009/01/to-disclose-or-not-to-disclose-lets-talk/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
			<content:encoded><![CDATA[<p>There&#8217;s a thread winding it&#8217;s way around social media and tech circles right now about Internet transparency.</p>
<p>I had a discussion with a friend about it not too long ago as she was moving through questions of &#8220;How much is too much&#8221;, and &#8220;When is it not enough&#8221;? I participated in a TweetChat last night with other techies, coaches and social media mavens about this topic. Then when I began reading my e-mail this morning, I ran across something <a href="http://scobleizer.com/" target="_blank">Robert Scoble had to say on Scoblizer</a> about disclosing health illnesses and conditions online and read the ensuing comments.</p>
<blockquote>
<h2><em>Your healthcare privacy is dying and why youâ€™ll killÂ it</em></h2>
<p><em><a href="http://friendfeed.com/e/58dd1134-8823-46c0-8922-0c95b4d7f21d/I-will-discuss-why-I-can-never-have-another-Diet/">Two days ago I told my friends on friendfeed</a> that I had a rare kidney disease and that I could no longer eat red meat or drink Diet Coke or Pepsi, among other dietary changes. Donâ€™t worry, my dad has the same disease and heâ€™s still doing fine, and the doctors have run a crapload of tests and found that Iâ€™m otherwise healthy. </em></p>
<p><em>But look what happened. 200+ comments. </em></p>
<p><em>That prompted me to <a href="http://friendfeed.com/e/08954685-00fe-4e55-b28f-4b99f83bfb0d/Health-privacy-is-dead-Here-s-why/">write another friendfeed item</a> saying that health privacy is dead. <a href="http://friendfeed.com/e/08954685-00fe-4e55-b28f-4b99f83bfb0d/Health-privacy-is-dead-Here-s-why/">I gave a ton of reasons</a> and lots of other people jumped in and either agreed or argued with me.</em></p>
<p><em>So, how about you? Why donâ€™t you join in on these two threads, or leave a comment here, about why or why not you will share your medical condition with the public</em>.</p></blockquote>
<p>The comments varied from people wanting to pursue a real discussion to people arguing with Robert about right and wrong.</p>
<p>It seemed appropriate to share it here because after all, we as people who live with disabling and chronic conditions daily are always having to balance those same questions: &#8220;How much is too much&#8221;, and &#8220;When is it not enough&#8221;? These questions exist whether we are self-employed or job hunting, or making new friends and now our comments are logged online if we participate in social networking such as <a href="http://www.facebook.com" target="_blank">Facebook</a>, <a href="http://twitter.com/" target="_blank">Twitter</a> or <a href="http://linkedin.com/" target="_blank">LinkedIn</a>.</p>
<p>For me, it&#8217;s a matter of personal choice. I disclose that information when I feel itâ€™s appropriate. I make no secret that I live a disability, I&#8217;ve written about it here, on <a href="http://www.krishanna.com/" target="_blank">my own blog</a> and I&#8217;ve shared the whole story of <a href="http://undertheknifeaward.blogspot.com/2008/01/3-krishanna.html" target="_blank">how I came to live a disability online</a>. I am open about it when people I don&#8217;t know well ask but there are times when itâ€™s in my best interests not to go into detail.</p>
<p>Like <a href="http://carolinadreamz.blogspot.com/2009/01/in-response-to-robert-scoble-and-heath.html" target="_blank">Heidi,</a> a commenter on Scoblizer, there are times when it&#8217;s my best interests to claim ignorance and just omit that I know as much as I do. Sometimes this means doing something their way, without jepordizing my health of course,Â  before I can show them doing it another way might be a better route.</p>
<p>There are just as many reasons why one should disclose disabilities and chronic conditions as there are not to disclose.</p>
<p>So, what about you? Where do weigh in on this topic? Do you make it public or are you more choosy?Â  Share your opinion with us!</p>
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